Transition From Children’s to Adults’ Healthcare for Youth With (Genetic) Intellectual Disabilities: An ERN-ITHACA Guideline
If it wasn’t for us, there would be no data: stakeholders’ perspectives on patient involvement in the use of health data in Ireland
Feasibility and usability evaluation of a gamified fatigue management mobile application for persons with Multiple Sclerosis
I don’t mind my information going to the Moon, but I don’t want any letters from Mars: a qualitative exploration of the challenges with secondary use of health data in Ireland
Big data research is everyone’s research-Making epilepsy data science accessible to the global community: Report of the ILAE big data commission.
The impact of COVID-19 on people with epilepsy: Global results from the coronavirus and epilepsy study.
Building public trust and confidence in secondary use of health data for healthcare improvement and research: a qualitative study pre-protocol
Report of the European Medicines Agency Conference on RNA-Based Medicines
Rett syndrome in Ireland: a demographic study
A Road Map for Remote Digital Health Technology for Motor Neuron Disease
Epigenetics explained: a topic “primer” for the epilepsy community by the ILAE Genetics/Epigenetics Task Force
Building a supportive framework for brain research in Ireland: Inaugural position paper of the Irish Brain Council
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