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18 publications found
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PRECISION ALS-an integrated pan European patient data platform for ALS
A Clinical Decision Support System for the Prediction of Quality of Life in ALS
Democratizing epilepsy care: Utility and usability of an electronic patient portal
A Road Map for Remote Digital Health Technology for Motor Neuron Disease
The anatomy of electronic patient record ethics: a framework to guide design, development, implementation, and use
Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers
Creating the conditions for a learning epilepsy care system
TRICALS: creating a highway toward a cure
Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review
Analysis of the aetiology of epilepsy in 3,216 adult patients attending a tertiary referral center enabled by an electronic patient record
Coproducing health and well-being in partnership with patients, families, and healthcare providers: A qualitative study exploring the role of an epilepsy patient portal
LoVE in a time of CoVID: Clinician and patient experience using telemedicine for chronic epilepsy management
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