Background

Secondary use of health data means using data for purposes beyond personal care, such as research and innovation, and improving health services. This study explores how to build a culture of trust that promotes safe and ethical use of health data for secondary purposes.

Research

The study gathers all key stakeholders in Ireland, and it explores their knowledge, experiences and perspectives regarding secondary use through focus group discussions.

Potential Impact

This study is relevant in the context of the legislative changes regarding patient information that are happening in Ireland and across the EU. The study has the potential to inform national policy and practice regarding secondary use.